ALS FAMILY SUPPORT GROUP OF OHIO INC.


(A 501(C)3 Tax Exempt Organization)

“Lou Gehrig’s Disease”

PLEASE COME AND VISIT US AT OUR WEB SITE!

 

 Phyllis Van Horn

Email –  werehere4u@roadrunner.com

 


SUPPORT GROUP MEETING

Thursday, November 20th

Dover Union Hospital
Reeves Auditorium

 

Speaker: Attorney James R. Contini

 

Topic: : Estate Planning


Our 5th Anniversary

On August 10th we had a party / picnic to celebrate the fifth anniversary of the ALS Family Support Group.

Celebrating five years of family support. – Walt & Phyllis

Some members of our family.  Jim, Mary Jo, Linda, Cathie, Nancy & Dave

The kids had a wonderful time in this beautiful pool.

Phyllis, Reb Robinson Singer/Songwriter & Cathie our gracious host.


 

Adventure Harley Davidson in New Philadelphia invited us to sell hotdogs and pop at their SHOW & TELL Cruise In.  They supplied everything we needed and donated the monies raised to our organization

We have a great group of volunteers who step up to the plate whenever they are needed.  Our tee shirts were donated to us by CD Tees in New Phila.

The Yellow Jackets Motorcycle Club was holding a raffle for this Custom Built Chopper.  These events give us a great opportunity to interact with people and raise public awareness of ALS

Thanks "Biker Chick" Phyllis


Click on pictures to enlarge

 

Don Mooney and his dad chat during an Akron Aeros game.  A group of us attended the
           ALS/MDA picnic at Canal Park

 

Applebee’s of New Philadelphia held a “Dining to Donate” fundraiser for us. Pictured
are David Platt, General Manager, some of Applebee’s staff and Phyllis

We had a fun night with Stand up Comics Tim Kidd and Carlos Valencia at a Comedy Night fundraiser held by the Canal House in Tuscarawas


Caregiver Expo

 

Phyllis

WJER Radio’s Bob Scanlon interviewing Walt & Phyllis

 


 

MDA TO WORK IN CONJUNCTION WITH ALS FAMILY SUPPORT GROUP

 

The ALS Family Support Group of Ohio, Inc. has announced that they will be working in conjunction with the Akron branch of the Muscular Dystrophy Association in holding support group meetings.  This is the MDA’s first official affiliation with a support group in the Tuscarawas County area.  They will be represented by Gina Kilberg, their Health Care Service Coordinator. The meetings are held the third Thursday of each month at 7:00 pm in Union Hospital’s Reeves Auditorium in Dover. There is no cost to attend. 

 

The ALS Family Support Group is based in New Philadelphia and has operated for the last four and a half years under the direction of Phyllis Van Horn.  The organization will continue in its regular operation with no financial support from MDA.  The only change will be the joining together in the support group meetings to provide expanded services for victims of ALS and other neuromuscular disorders, their families and caregivers. This is a perfect fit for both organizations.

 

The Muscular Dystrophy Association is the world leader among voluntary agencies in fighting amyotrophic lateral sclerosis (ALS).  MDA’s ALS Division offers the most comprehensive range of services of any voluntary health agency in the nation, and leads the search for a treatment or cure through its aggressive, worldwide research program.

 


Phyllis & Brad

Brad Speaking

Jennie, Gary & Brad

We were honored to have Brad Sussman, Executive Director of the ALS Association Northern Ohio Chapter.


Phyllis Van Horn recognized by The Ohio Senate (PDF)


  Great volunteers having a good time.

Thanks Phyllis


Hometown Heroes Honored

Over 250 people gathered last night to honor our community

3/30/07 - Hometown Heroes Honored

Over 250 people gathered last night to honor our community’s finest at the 2007 Hometown Heroes Awards Banquet. The Muskingum Lakes Chapter of the American Red Cross honored 15 Hometown Heroes and awarded 8 children for a youth writing contest. Brian Proctor, Chairman of the Red Cross Board, says the event is designed to honor everyday citizens from Tuscarawas, Carroll and Harrison Counties that go above and beyond the call of duty. Executive Director Chad Conrad says several nominations were received and says there was a theme among this year's group of winners. They were all honored for not just one heroic act but for outstanding service to their community.

Phyllis Van Horn of New Philadelphia was given the distinction of Health Care Hero. Van Horn is the director of the ALS Family Support Group of Ohio. She founded the group after her twin brother and sister contracted and died from the disease most commonly known as Lou Gehrig’s Disease. Van Horn says she doesn’t consider herself the hero. She says the real heroes are those suffering from the disease.

 

Taken from WTUZ Radio Website


 


At this time we would like to publicly thank George Goodwin for his tireless support of our organization. George, not only have you supported us on the ALS Independence site but have exchanged countless emails encouraging us in our endeavors.

As the Director of the organization I want to say that you have been a beacon of light and have helped me to keep my focus. You and Shirley are an inspiration to us all.

Sincerely,
Phyllis Van Horn, Director
ALS Family Support Group of Ohio, Inc.



For more information call Phyllis Van Horn at 330-343-2690 or,
Visit us on the Web at
werehere4u@roadrunner.com


Our Mission is to provide aid and support to victims of ALS and other neuromuscular disorders, their families and caregivers.
 


 

513 Chauncey Ave. NW

New Philadelphia, OH 44663
For more information call Phyllis Van Horn, Director at 330-343-2690

 


 

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